The distribution of over 370,000 awareness cards for parents and health professionals teaching the signs and symptoms of childhood cancer. The Grace Kelly Ladybird Trust are funding the insertion of this card into the PCHR (Infant Red Book given to the parents of newborn babies) in many regions.
Research into solid tumours of childhood is very underfunded. Currently the GKLT are funding two research programmes into rhabdoid and other rare solid tumours to help in the search for better and kinder treatments for children with these aggressive tumours.
In the last 10 months, 7 children from the UK have passed away within the GKLT support group. GKLT provide support grants to the families affected to help towards funeral and other costs at this devastating time
The Grace Kelly Ladybird Trust have produced educational resources for parents and professionals to raise awareness of the signs and symptoms of childhood cancer. We have also recently released publications for parents to receive if they child is diagnosed with a rhabdoid tumour. These have been rolled out to principal treatment centres nationally. They are the first of their kind for this tumour type in the UK.
Support is crucial for families affected by childhood cancer. GKLT run an online support group for families from the UK and internationally affected by rhabdoid and other rare aggressive solid tissue tumours. "A beacon of light in a terrible storm."